Thank you for sharing your story. It makes me feel less alone. I know that doesn’t help you much but just know that your words mean something! I also have Ehlers-Danlos Syndrome as well as Chronic Hemiplegic Migraine and Fibromyalgia. I have learned the hard way not to push myself too close to my wall because the price I pay is too high.
This brought tears to my eyes. Thank you for sharing, too. To make each other feel seen is such a gift ✨
I hear ya. I feel like the hardest part is my limits change every day. One day I could walk around my apartment building and have the freeze or I can pack a lot and not. It can be so unpredictable.
Thank you for sharing this. I am sat in the car at my daughter’s football match as they moved the game and I cannot manage the walk to see her play (stupidly forgot wheelchair). Your post really resonated.
Thank YOU for sharing. I am so sorry you had to miss her game. I hate that we so often miss out on or get a partial experience, with an aid or not. We took my niece and nephews to an escape room a few nights ago and it was far from accessible. So disappointing to only be partially in it with them because I really needed my rollator.
I can't tell you how many times I forgot a mobility aid because I was in a rush and struggled to do what I set out to do. You are definitely not alone in that, and I am sending you grace for forgetting 💞
So do I! I have to remind myself that my ever shifting executive functioning is part of several of my disabilities, and it's okay if I'm imperfect at doing and remembering all the things. Giving ourselves grace is so hard sometimes...
Thank you for sharing your story. It makes me feel less alone. I know that doesn’t help you much but just know that your words mean something! I also have Ehlers-Danlos Syndrome as well as Chronic Hemiplegic Migraine and Fibromyalgia. I have learned the hard way not to push myself too close to my wall because the price I pay is too high.
This brought tears to my eyes. Thank you for sharing, too. To make each other feel seen is such a gift ✨
I hear ya. I feel like the hardest part is my limits change every day. One day I could walk around my apartment building and have the freeze or I can pack a lot and not. It can be so unpredictable.
🫶🏼
Thank you for sharing this. I am sat in the car at my daughter’s football match as they moved the game and I cannot manage the walk to see her play (stupidly forgot wheelchair). Your post really resonated.
Thank YOU for sharing. I am so sorry you had to miss her game. I hate that we so often miss out on or get a partial experience, with an aid or not. We took my niece and nephews to an escape room a few nights ago and it was far from accessible. So disappointing to only be partially in it with them because I really needed my rollator.
I can't tell you how many times I forgot a mobility aid because I was in a rush and struggled to do what I set out to do. You are definitely not alone in that, and I am sending you grace for forgetting 💞
I am so pleased I am not the only one to forget these things! I feel so stupid when it happens.
So do I! I have to remind myself that my ever shifting executive functioning is part of several of my disabilities, and it's okay if I'm imperfect at doing and remembering all the things. Giving ourselves grace is so hard sometimes...